| Orphan Lung Diseases... ...A Soft Place To Land... |
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THIS SITE IS UNDER
CONSTRUCTION _ PLEASE
CONTINUE TO CHECK BACK OVER
COMING WEEKS AS DEVELOPMENT
PROGRESSES
CONSTRUCTION _ PLEASE
CONTINUE TO CHECK BACK OVER
COMING WEEKS AS DEVELOPMENT
PROGRESSES
I believe that everyone needs a 'Soft
Place to Land'... A place where they
feel safe, secure, understood and
encouraged.
Life throws many challenges our way even when we are
fit, healthy and without illness. For those of us who
have an illness or disability-we know all too well that
life will continue to throw the usual difficulties our
way, but over and above these difficulties, we are also
faced with a whole range of challenges that are unique
to having an illness or disability. We face our own
unique set of hurdles each and every day, and it is not
uncommon for those of us who are unwell to feel a
little weary.
It is my intention that this Web Site will provide a
'Soft Place to Land' for fellow sufferers of Orphan
Lung Diseases. I have a diagnosed Orphan Lung
Disease (there will be more about me in other pages on
this site) so I am very aware of what a person with
Orphan Lung Disease faces.
I hope to raise the profile of Orphan Lung Diseases, at
least, within South Australia. I also hope to establish
a network of support via this web site. I am hopeful
that I will also soon be able to co-ordinate a 'support
group' in Adelaide for sufferers of Orphan Lung
Diseases where we could meet on a regular basis for
information exchange, support and a 'Soft Place to
Land'.
Place to Land'... A place where they
feel safe, secure, understood and
encouraged.
Life throws many challenges our way even when we are
fit, healthy and without illness. For those of us who
have an illness or disability-we know all too well that
life will continue to throw the usual difficulties our
way, but over and above these difficulties, we are also
faced with a whole range of challenges that are unique
to having an illness or disability. We face our own
unique set of hurdles each and every day, and it is not
uncommon for those of us who are unwell to feel a
little weary.
It is my intention that this Web Site will provide a
'Soft Place to Land' for fellow sufferers of Orphan
Lung Diseases. I have a diagnosed Orphan Lung
Disease (there will be more about me in other pages on
this site) so I am very aware of what a person with
Orphan Lung Disease faces.
I hope to raise the profile of Orphan Lung Diseases, at
least, within South Australia. I also hope to establish
a network of support via this web site. I am hopeful
that I will also soon be able to co-ordinate a 'support
group' in Adelaide for sufferers of Orphan Lung
Diseases where we could meet on a regular basis for
information exchange, support and a 'Soft Place to
Land'.
DISCLAIMER
**NOTE: I am a qualified Social Worker. I am not medically
trained, nor am I a Doctor, so I strongly advise you to check any
information or advice that I might provide with a Medical
Practitioner.
**NOTE: I am a qualified Social Worker. I am not medically
trained, nor am I a Doctor, so I strongly advise you to check any
information or advice that I might provide with a Medical
Practitioner.
| I ask that you consider passing the details of this web site on to other people whom you think may be interested, or who may benefit from it's content. By doing so, you may just be contributing to raising the profile of Orphan Lung Disease's and the impact that these have upon people's lives. The address for this site is: http://www.orphan-lung-diseases.com |
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